Ian is having a tenotomy (heel cord/Achilles' tendon release) surgery today. we had his shriners checkup last monday and they gave us the option to have it done at our convenience. not much is going to be convenient after Peanut arrives so we opted to do it ASAP. We had to do a lot of schedule changes, phone calls, and changes of plans to get everything worked out, but I think this way will be best for both Ian and our family. He will get better range of motion from having it lengthened which will hopefully improve his mobility.
It's a fairly minor surgery but they still have to put him under so it gets complicated with his dwarfism complications. He will have both legs fully casted for 3 weeks and then we will bring him back to have the casts removed. This is his first major surgery and I hope his last! He has had one tenotomy before at 3 months old but at that age they just use a local and Tylenol for pain management. This time will be a little different.
Last week he had to be evaluated by two anesthesists to make sure his airway was stable. Children with diastrophic dysplasia can have weak or unstable airways so there have to be extra precautions taken. They cleared him and said his airway was strong and well formed. Today when he woke up he was croup barking a bit so we were nervous but they checked him again and said he was good to go. The cold/croup was just nasal/upper airway and wouldn't affect his anesthia.
He was really tired, hungry, and just generally whiney and cranky this morning. Ian is very observant and he knew something was up. He didnt want his hospital gown or armbands or for me to do anything other than let him sit in my lap, so that's what we did from6-8. He napped off and on while in my lap.
They took him back at 805 and they just called at 845 to say he was on his way to recovery. Dr dobbs said they got good correction in the feet so that's great! We are just waiting for him to wake up so we can go see him. I hope it's soon because passing him off to anesthia and the past hour have been the hardest of my life I think. He was crying so much and screaming for me when they took him and it just made me feel helpless and horrible.
We got to go back and see him about 915 and he was pretty upset. He didn't want anything on. Not the gown, IV, blood pressure cuff, pulse ox monitor, and definitely not the casts. He didn't even want a bandaid on him. He said "mama, help me! Take them off. I don't like them they hurt." It didn't take but 10 minutes of us being there and him going in and out before the oxy they gave him took effect and he went to sleep. Before that he would be crying and asking for them to come off and the next second he would be snoring.
We all took a short nap in recovery and then went upstairs to outpatient recovery. Justin and I dressed him while the nurse got his papers ready and he slept through the whole thing, except to tell us to leave him alone because he wanted to sleep. Then he slept in the car while we got his Rx and some lunch, only to wake up for 5 minutes to ask for his cars (new toys we bought last night but didn't open, he remembered them!) he was even funny for a little bit the way he was talkin before he passed out again.
Things are going to be even crazier in our house after this but I'm hoping to document it so I hope I can keep up with the blog posts. This past week we had his appointment and the kids and I were in effingham for the week. Justin's grandpa passed away last week so we had his funeral this weekend. The past several weeks have just been a blur for us so I just haven't had the energy to post much. As much as I want to write and document, it also takes time and energy and I've been lacking in both of those lately.
Thanks for staying with us as we transition yet again! Be praying that Ian adjusts well to the casts. It took him about 3 days last time to relearn to walk on them so hopefully he will be up and mobile again soon. That will make him happier for sure.